*Originally published 9/18/13*
It's the 4th week I school and I am already really behind. Even with my abbreviated schedule, I miss a lot of school. I'm still trying to catch up from missing the whole second. I have taken 2 quizzes but I still have 3 to make up. On top of that, I still have to keep up with my work that's going in this week. I have a unit test in science tomorrow and a unit test in math on Friday. I feel terrible and I am hoping I can go to school this whole week so I won't get more behind. Getting behind makes me stressed which makes me feel worse. When I went to my new doctor Monday, she said that Lyme loves when I'm at school. She said Lyme likes when you are sitting still, like you do all day at school. She also said it likes dehydration, which you are at school because you are not drinking as much as you should. It's only the 4th week out of many more and I'm scared for the rest of the year.
But I'm still hopeful! Monday I went to my new Lyme Literate doctor, and it was great! I like her a lot! We were there for 4 hours, and I had 12 vials of blood taken. After that, I am feeling the most hopeful I have ever been through this journey that an ending could be coming! It is still going to take some time, but it will come! After going through my symptoms and all of my other tests that I have done, this doctor thinks I have Lyme along with babesia and bartonella. One thing I really like about this doctor is that they look at the whole picture! They look at my body as a whole, and don't just focus on each symptom. I am now on a strict diet to eliminate the things that Lyme feeds off of.
Starting next week not only am I gluten free, I am also sugar free. I can have limited fruits, so no grapes or apples. I have to basically be organic. I'm not looking forward to this, as food is my pride and joy! But if it will help me get better, I will do it!
Also starting next week, I start to follow the plan the doctors gave me! The plan is: week 1- detox week no antibiotics just supplements to help me detox. Week 2- this week I start antibiotics. Week 3- the antibiotics get stronger Week 4- same as week 3 with an extra antibiotic. Week 5- off Week 6- repeat week 3.Then I go back to the doctor to see how the plan is working!
This won't be easy and I know that. I know that I will herx really bad. I know that sometimes I will feel like I am not going to get better! I know that this will take time. But I am ready to do whatever it asked to get to remission!
As I am fighting my battle against Lyme, I am also fighting a battle against the CDC and the non-believers in Lyme. Today I read an article in a major newspaper in our area about how testing for Lyme is often unnecessary and leads to inappropriate care. This article is full of false information on Lyme! It says that if people are only showing small amounts of symptoms of Lyme, they don't need to be treated. I started off with a headache, then more symptoms came along which is exactly what will happen to people with Lyme. As time progresses without treatment more symptoms show. This article was spoon fed to the post straight from the CDC! I can't understand how they can be so blind to us.
As I sit here crying from the pain I wonder: How can they say we don't exist when we are right here? How can they give false information when we know its not true? How can they not want to help us? That's the thing, they don't want to help us. They would rather pretend we don't exist then try to help us get better. They won't acknowledge that this is a growing epidemic. They won't tell people the truth about this horrid disease. But we know the truth.
We know that this disease is one if the fastest growing in the nation. We know that ticks aren't the only way to spread it. We know that testing for Lyme is not accurate. We know that if you don't have a bullseye, you can still have Lyme. Most importantly we know that we can't be pushed aside any longer.
We need our voices to be heard. We need to fight back and let the people know the truth. We need our side of the story to be in the newspaper and on the news. We need people to finally understand that this is a serious disease and if they keep turning their backs, on us it's only going to get worse.
We need to Bite Back.
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