*Originally published 3/24/13*
This week I'm on spring break. Most people are spending their spring breaks outside at the beach, or hanging with friends. But nope, not me. I'm going to be sleeping all week and maybe watching some tv. It's really upsetting to have to stay cooped up inside all day while my friends are off having fun.That's why on Wednesday, I am hoping to having a video chat support group with other teens with Lyme from all around the country.It will be so nice for all of us to have people to connect with that actually understand how we feel.
Yesterday, I attempted to play catch with my brother, but now I'm in a ton of pain. When most people wake up from sleeping they feel great, but not me. When I wake up, I can barely move. My shoulders hurt, my knees hurt, and my neck hurts, for starters. For Lymies, sleeping is a big issue. We are always sleepy until its time for us to go to bed. In fact, I think I'm becoming nocturnal. I can fall asleep at any time in the day, but at night time, I can't fall asleep to save my life.
This week, we got a drink that is supposed to give me energy, but so far, I haven't had much luck with it. This past week, I didn't make it through one full day of school. I went to my morning classes twice all week. I had a really bad week because my Babesia symptoms have been really bad. On Friday, I had long-lasting tremors in my hands, legs and jaw.
Then on Friday evening, I felt a littler better. People around me kept asking: "Are you sure you're sick?" And that's really upsetting. Yes, I'm sure I am sick. No one in their right mind would fake going through this. I don't like not being able to do the things I love. I don't like not hanging with my friends. I sure as heck don't like missing so much school that I am constantly worried about my work. Sometimes I may feel okay, and that's good. But I am still sick, and five minutes later I may not be able to even move.
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