*Originally published 4/24/13*
That's the question I get when I tell people that's what I have. The truth is, I'm not actually positive what Lyme disease really is. And the doctors aren't either. Lyme is pretty much everything you can think of. You have a cough, it could be Lyme. If you have joint pain, it could be Lyme. If you have brain issues, it could be Lyme. Lyme bacteria come in the form of spirals that can basically "drill" into anywhere they want to in your body. So Lyme can literally be in your bones.
There is no distinctive cure for Lyme. For a lot of people, lots and lots and lots of antibiotics so the trick. But not for all people. There is not just one drug that fits all. Everyone's body is different. Everyone is at different stages in the disease and their bodies may respond differently to the medicines. For some people, myself included, antibiotics don't help.
When I was on antibiotics, I felt even more terrible. Now that I am doing homeopathic remedies, I have more better days than I did. The problem is trying to find what works right with your body. For some people, this can take years and lots of money. Which is another problem. Lyme ain't cheap. Most of the Lyme literate doctors don't accept insurance and their monthly appointments can cost hundreds of dollars. Then there's the homeopathic doctors, where you have to pay hundred of dollars for the remedies, too.
I know of many people who have refinance their homes because the cost is too much, and worse, some who have to stop treatment. I am so lucky I have the support system I have. If I didn't have my parents who keep fighting until I am cured, I would probably be all on anti-depressants by now, because the first doctor I went to wanted me to go on them. My parents kept taking me to doctors until we found something that works. But a lot of people song have that. It's sad to think that some people don't believe in this disease so they never find the right medicine and never get better. It's hard to think, but Lyme is a disease and some people die from it.
So that's what Lyme is to me. A completely life altering, life sucking, awful, horrid disease. Yes it is real and yes we need a cure!
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